Weill Cornell Medicine Klinefelter syndrome Care Center
AXYS: The New York Area Support Group for X and Y Chromosome Variations
Hermansky-Pudlak Syndrome Network
Mount Sinai Perinatal Bereavement Program & Support Group Contact: Laurie Chameides, LCSW; Phone: 212-241-4685
New York-Mid-Atlantic Consortium for Genetics and Newborn Screening Services
New York State Clinical Geneticists and Genetic Counselors: Cancer Genetics
New York State Genetic Counselors
Telegenetics Resources
- Center for Connected Health Policy
- MidAtlantic Telehealth Resource Center COVID-19 Toolkit
- National Consortium of Telehealth Resource Centers COVID-19 Toolkit
NYMAC Regional Genetics Network:
- NYMAC Regional Genetics Network 1-on-1 Technical Assistance: nymactelegenetics@gmail.com
- NYMAC Regional Genetics Network Website
- NYMAC Regional Genetics Network Resources Flyer
- NYMAC Regional Genetics Network Program Planning Toolkit
- Western States Regional Genetics Network Telegenetics Toolkit
- CMS COVID-19 policy info
- HIPAA and COVID-19
Telegenetics info and resources for patients and families:
- https://expectinghealth.org/sites/default/files/inline-files/Telegenetics%20Infographic_0.pdf
- Video: https://www.youtube.com/watch?v=-h-XRYtLEn8&feature=youtu.be
- Video: https://www.youtube.com/watch?v=-h-XRYtLEn8&feature=youtu.be
- https://midwestgenetics.org/resources/telemedicine-resources/
Telehealth Licensure:
- Pre-COVID-19 Telehealth Licensure Info
- COVID-19 State Licensure Changes and Waivers for Telehealth Providers
Telehealth Funding Opportunities:
- Website: https://www.fcc.gov/document/guidance-covid-19-telehealth-program-application-process
- Website: https://www.fcc.gov/document/fcc-proposes-100-million-connected-care-pilot-telehealth-program
Telehealth Technology: (note that technology recommendations have been changed during COVID-19)
- Telehealth Technology Assessment and Resource Center has technology toolkits available to assist with selection: http://telehealthtechnology.org/
- Equipment List to Start Doing Telehealth Quickly
- MATRC Vendor Selection Toolkit
- HIPAA and COVID-19
Reproductive Resources
- NYC abortion page
- NYS abortion rights page
- a gov sponsored website about human reproductive rights
- links to articles, specifically focused on access to later abortion
- for the most accurate and up to date info on abortion access and laws
- https://acog.az1.qualtrics.com/jfe/form/SV_ePbdNap5uEr5hqe
- genetics providers focused on reproductive justice
- https://go.peoplepower.org/signup/vote-your-values-fight-for-rights/